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MPS1 Research

Challenges For People With MPS1

As one of over 6,000 rare diseases, money for MPS1 research is scarce and therefore promising new treatments are often delayed. While there is currently no cure for MPS1, the success of bone marrow transplants and enzyme replacement therapy have given people with MPS1 the chance to lead a longer life.

However, because it is degenerative, those with MPS1 endure multiple surgical procedures, pain and disfigurement as the disease progresses.

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Erik’s Chance

Inspiring Others To Fight MPS1

The third “Erik’s Chance” reception was a huge success. This year the largest number of guests we have ever had learned in a special presentation by Dr. Aminian that the first phase of the research study we funded showed incredibly positive results!

Erik is now ten years old. His caring spirit and positive attitude, despite all of the challenges and surgeries he endures, inspired his family to create the MPS1 Research Foundation.

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About MPS1

MPS1: A Deadly Disease

Mucopolysaccharidosis 1 (MPS1) is a genetic lysosomal storage disease caused by the body’s inability to produce the enzyme, alpha-L-iduronidase.

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How You Can Help

There are many different ways you can support the hard work of scientists and doctors helping ease the pain and suffering of those with this terrible disease.

Learn How To Help Those With MPS1